From the Horse's Mouth

As I explained to my counselor yesterday, I hate taking pills. I hate feeling dependent on synthetic crap to make me "work right." I hate needing medicine. I hate owning up to the fact that I have any disease or disorder. But I do: High blood pressure. Hypothyroidism. Diabetes.

I talked at length for most of our session to make clear the feelings I have about asking my doctor to go back to taking medicines that regulate my hormones and insulin output. I do take high blood pressure medicine without complaint...mostly because I feel horrid if I don't. The headaches and general discomfort have hammered that prescription into my daily life. I hate that, too.

But I went on and on about how I've been able to regulate the Diabetes AND increase thyroid activity by diet and exercise - not to mention that I've been truly consistent with neither for a year. Of course I didn't mention that part! Fortunately, I've been to this counselor regularly since before my mom died and she knows that while there was a good six months, once upon a time, when I DID do spectacularly well via diet and exercise (and was improving my BP and every other important regulated system in my body,) that time is past...and my attitude toward drug-taking is obsolete.

I tried to diffuse her argument, saying that I did it once so could do it again. Do you know want what she said to me? She said, "Isn't that interesting that you want to be healthy, but you want to do so on your own terms. You want everything to work out the way you want it to, but you're not willing to do the things you need to do for that to happen." I was quiet for the pause. "Isn't that what your mother tried to do?"

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I can't say what I felt at that wallop, but I heard the truth. And in the span of only a few minutes, I relived the aching hours spent watching my mom's body disintegrate before my very eyes. That is what she tried to do. How much am I like her? And how do I stop before I become what she has become?

The question led me to a day long search for a physician who works with patients who experience metabolic syndromes like Diabetes and Hypothyroidism (and whose family history is full of heart disease and strokes and cancers).

I found someone who has a private practice over 2 hours north of where I live and I'm going to go see her. I've already sent her an email sort of outlining what is happening with me. My luck, she is taking new patients and can accommodate out of town people like me...and has done gobs and gobs of work to help individuals like me whose genetic predisposition is the suck.

So tonight/this morning I feel intensely mortal, delicate as tissue paper, and have not been able to sleep with all the worry over what my body is doing now. I am sorry it took such a jolt of awareness to make me look in the mirror that doesn't reflect Wendy: separate from her mom, but Wendy: the overlay on her mom's sad image. At least it took.

Why I Won't Play Tetris

if you can't watch the sun rise,
i'll watch it for you.
if you can't get on your feet,
i'll stand up tall.
if you want to feel the ocean,
i'll run through it.
you gave me life, the greatest gift of all.
if you can't say you love me,
i'll just know it.
if you can't take a breath,
i'll drink mine in.
if you can't fight the fight,
i'll find the will, mom.
i'll savor life, your greatest gift of all.

I wrote that for my mom two days before she died. I felt so strong -  yet so helpless - then. I was willing to do and to be whatever it took to help her carry on in this world (because she so wanted to live) and I was struggling to let her go to be free of pain. She was in so much pain. I had to look back in my timeline and find this poem to read it again...mostly to remember what I promised.

One of the hardest things to do so far is the "I'll just know it." I do know it, innately, that she loves/loved me. And it's heartbreaking that I can't hear her tell me.

I love my mom and I miss her so deeply my heart hurts. 

What's nice to notice is that I am savoring life. I recognize the importance of taking care of myself and modeling that for my own daughter because of the insurmountable obstacles that eventually cost my mother her life.

I liken the end of my mom's life, and maybe my own life, to that game called Tetris because for a while she was able to navigate easily despite a barrage of difficult decisions and laborious tasks, right? Especially in her last five years on earth. She'd avoid pile ups and think really quickly and find last-second fits to the constant puzzle that rained. She would hurry to the next uncommon thing to come down toward her and pray and pray and pray and try and try and try to make the right adjustments to get all the pieces where they needed to be.

But life was too fast. Her burdens were too many. Her health was too out of shape. And she died.

I don't want my end game to be a scramble for survival. I want to come to a successful end I can be content with and glad about. I want to grin at my final score and know I rocked life.

I promised to fight that fight up there in that poem, but I can't play my mother's game and win. I have to play something more rewarding....more slowly, methodically, strategically in all fairness to myself and everybody else.  I wish she could do this with me.

How'm I Doin?

Diet-wise, pretty well considering I'm in MA and old habits creep in very easily when I'm here. It's tough to refrain from old favorites like Venus pizza and Marcello's meatball subs, but I have avoided both pretty well. Didn't go to Mia's for pasta either - but I diiiiiid indulge in Peaceful Meadow's ice cream for my lunch today and my body told me (in no uncertain terms) not to do that again.

Being off of simple carbs and sugar for over six weeks means that a reintroduction can prove ugly for your GI tract - just FYI, no photos here. 

I am feeling the need to eat more veggies though. Eating on the go, as I am right now, it is tough to find good, green vegetables that aren't BROCCOLI every meal. Salads get boring.... so can't wait to go home and fix normal food again. Seriously.

When going home day is...I still don't know.

I had a good day, all told. I was able to do some laundry, met my mom's lawyer, got a whole bunch of stuff sorted out as far as her assets and income and what to do with what because mom has made it clear I should prepare for a time she won't be with me any more. I hate the very thought of it.

Tuesday, she took her rings off her fingers and made me take them, which nauseates me still. I know she is doing this to have peace of mind about stuff and to make sure she gives people what she wants them to have but I'm not -ready-. I want my mom still.

I've not cried as much lately because I feel like the hospital she is in is very good with her, very attentive, and I don't have to worry as much about her safety. Tomorrow we'll see a renal specialist and know a little bit more about their treatment options. Seems before she even has her heart valve looked at...they have to help her get her kidneys back to good. We are all hoping they can be. Hoping, praying, hoping, praying.

How YOU doin?  I really want to know.

Achey Me.

We're spending one on one time with Crackers (our cat) whenever we feel we can. He's up for being cuddled just a little. Mostly he wants to sit on his own, tucked away in the restroom on a towel I doubled up for him. He's moving pretty slowly and the phases our vet explained would happen are taking place. It's troubling letting your pet die on his own; yet, none of us is able to give a go ahead for euthanizing him. Either choice is a hard one...but we're pretty resolved to try comfort measures right now.

I feel bad for the times when he would hop up to be in my way and get some loving that I pushed him off or set him aside so he wouldn't be a nuisance or get in the way of what I was doing. Granted, I didn't do so EVERY time, but the times I did were pretty ignorant of me. It was only a few weeks ago. His decline has been rapid - too rapid - and heartbreaking, but we're trying to give him the dignity we'd give any one of our relatives who is dying by loving him the best we can while he's still among us.

It's the first we've ever done this. In the past, we've had a cat and two dogs who died very unexpectedly so there was no goodbye time, no extra TLC, no being with them through the scary part.

The vet believes Crackers understands what is happening and is doing what comes naturally to cats. We just love him so much.

I've had a horrible time with food all over again - and my ambition is half-hearted with just about everything. I'm sure some of it comes from worrying about and mourning my cat and some of it comes from worrying about my mom and stressing over her world of issues and some of it comes from that lonely feeling that happens when you realize at the bottom of your bottom there is no one to pull you out - it is really up to you and whatever faith you can muster.

If I didn't believe in God, I'd be an even deeper mess. But, I do. I really do. And I pray that we are doing what is right for Crackers and that we are being respectful as we hang with him these last days.

Life Sucks when your Mom is an Invalid..

...or nearly is. In the past two weeks I've gotten texts, emails and private messages warning me that my mom is very unhealthy and is not doing anything to help herself. I don't know if she has the energy, battling sickness, that she needs to help herself or if her will is broken. I am in the should I stay or should I go debate, with everyone telling me they will let me know if I should go up there. How do I stay put? I'm embarrassed for my mom. She's grown to a very huge size and, I'm told, hardly gets out of bed now.

She calls and talks to me like it's just another average day of going to the restroom and having popsicles because she's feeling dried out. She can hardly walk on her own but recently texted me to say she went without a walker, all by herself, from one place to another - progress!

It's hard to tell if there is progress or if she's really fighting a losing battle. Is she trying too little too late? Is she physically unABLE to help herself anymore? She won't go to a hospital nor will she accept that she needs REAL TRUE managed care and assistance. She has friends and family and people who are in her house to help, but they love her and they'll do for her what medical caretakers would not.

I called my mom recently and cried, simply cried, because I don't want her to die, especially like this: broken, alone, depressed, enormous, blistered, bored, lonely and immersed in what many of us would call personal hell. I cried and I told her I didn't want to lose her. I told her I didn't want her to die and I still need her and love her.

She said she's not going to die and she's tried to make me feel better..but I feel so hollow. I feel very, very hollow and afraid.