Tuesday, May 10, 2016

About my mom...

"Carole and I met in 1957. It was our first year at West Jr High, a brand new school recently built and very intimidating to a twelve year old like me. I had spent my childhood with a sister just eleven months older and I relied on her to tell me what to do. Now as I approached my teens it was time to grow up and I desperately needed a friend to do that. 
 
When I met Carole she was confident and completely comfortable in who she was. We became instant best friends and spent most of our time together over the next three years. A favorite pastime of ours was walking downtown to shop or take in a movie. Then it was off to Sylvia Sweets for Fries and a cherry coke. 
 
We talked about everything. I poured out my heart and soul to her and she listened. She never judged or told me what to do. She let me come to my own conclusions. I was still filled with panic as to where I was going and who I would become. 
 
Carole was calm and ready for her future whatever that might be. I always envied her way of living in the now and not worrying about what may come next. She bolstered my confidence assuring me I would do fine. In 1961 as we entered High School I was a totally different person due to Carole's influence. The frightened girl was gone and in it's place a woman ready for her future.
 
We lost touch after that but reconnected again year later through Classmate.com and then Facebook.I didn't get to spend as much time as I hoped with her but I will always remember her and what she did for me...."   - Donna P.

Me too, Donna.

Monday, February 29, 2016

So full...so fast.

Eating is all new after weight loss surgery. It's going to take some time for my habitual behaviors to cease! I scoop reasonable amounts of food on my plates only to find that I've sorely misjudged how much food to serve myself. I haven't overeaten, because the newly sized stomach form won't let me, but I have taken a lot more than I can honestly put away. It's a strangely fun conundrum I am having a bit of enjoyment with.

Eating and drinking enough is; however, an unforeseen chore. I mean it! In the fifteen or so hours of being awake, I'm supposed to drink at least 48 ounces of liquids, SOME of which needs to be protein drinks, AND eat 4 small meals. AND I have to space the liquid and foods at least 30 mins. apart from one another. Do you know the day is just not long enough to do all this? At least not yet.

Clear liquid isn't very filling and it doesn't cause discomfort unless I drink too fast and trap air in there...then have to burp. Burping sucks. It is at once a relief and an awkward pang...but enough of that. The thicker stuff, like protein shakes and soft foods (eggs, beans, minced up meats like ham, fish and poultry) make me feel full relatively quickly and just kind of sit in my stomach. It takes some time before I can safely drink anything (because it's a rule) so I'm usually thirsty after a meal. I'm like a ten-year-old watching time, just waiting for the go-ahead to sip something.

For the first week of eating foods, I have flailed just trying to keep up with demand (the ounces, the number of small meals, the instructions to eat every 4 hours)...so I created a schedule with prompts that push to my phone and calendar - stuff to make me do what I'm supposed to.

Here looks a day in the life:

8 AM Soft Food Breakfast (2-3 ounces)
8:30 AM to 10 AM clear liquids (sipping, sipping, sipping whenever possible)
10 AM Protein Drink (11 ounces)
- this takes me anywhere from 1 to 2 hours to finish but I have to stop by 11:30 because I can't drink anything from 30 mins before until 30 mins after any food.
12 PM Soft Food Lunch (2-3 ounces)
12:30 PM to 2 PM  clear liquids (sipping, sipping, sipping whenever possible)
2 PM Protein Drink (11 ounces)
4 PM Soft Food Snack (usually a string cheese stick or a Babybel cheese)
4:30 PM to 8:30 PM clear liquids (sipping, sipping, sipping whenever possible)
8 PM Soft Food Dinner (2-3 ounces)
8:30 PM til bed time clear liquids (sipping, sipping, sipping whenever possible)

But, believe me, it's hard to drink 48 ounces of liquid AND eat 12-ish ounces of food - which sounds crazy, right? I could easily drink 4 Coke Zeros a day. Maybe even 5. Maybe even 6. I skipped meals, drank Coke Zero, lost myself in work and busy-ness until I was so ravenously hungry, I'd go for anything fast (aka premade and ready to eat!) Nothing healthy to mention.

I'm going to keep trying to stick to this plan and (hopefully) get better at it. The real threat is dehydration and hospitalization so I want to be super careful about it. Anyway, tomorrow is my week three-versary.

I am functioning well. I'm back to work, back to driving, back to eating (kind of) normally and I'm still so glad I chose weight loss surgery. My next goal is to treadmill just a little bit and see if I can make a pattern of that.



Thursday, February 25, 2016

It's Doctor Day! It's Doctor Day!

"Thank God, Almighty," it's Doctor Day! By the time you reach the end of your 2nd week post-op,  you will rejoice, too. The big deal about today is twofold: I should hear the words, "You can drive again." and get permission to eat mushy foods.

Mushy, baby food-thick, foods may not seem appetizing to you...but to me this is almost the best news ever. I've been drinking meals for 4 weeks and beef & chicken broth, SF popsicles and gelatin will only get you so far in between protein shakes. It takes me a long time to drink a protein shake, but drinking clear liquids and eating popsicles isn't that hard at all.

I hope everything looks good in terms of healing. I'm excited to have my sutures looked at. The largest one has a bump under it that I'm a little concerned for...but I try to keep in mind that muscle has been cut through and had to be repaired as well. It could just be a bump from all that fibrous muscle tissue clumping together. That's the hope! Fingers crossed?

Otherwise everything feels good to me. There are some sore spots...but nothing feels painful. I haven't had to take my pain medicine since a few nights after coming home. Recovery has been incredibly easy. I don't know if it's the same for everyone, but I hope so.

I've planned a trip to a nearby Indian food restaurant (IF the nurse gives me the go-ahead to eat mushy food) where I can have mushy cheese and spinach (palak paneer) or maybe curry lentils. Something soft and not clear liquid. Are you feeling me?


Prayers for a good outcome. Peace!

Friday, February 19, 2016

OMG! It's been a whole entire week!



A week ago, tonight, I shared a room with my daughter and the most ice chips any hospital has ever produced. The procedure itself was over in less than an hour, that morning, but I was still feeling the affects of the gas pumped into my remainder of stomach and the cuts and bruises all over my middle.

I stayed overnight in the hospital about an hour away from home so it was really cool of my girl to drop on a cot and just be with me for the duration. She was sincerely helpful in every way. I found myself mothering her just as much as I always do - insisting to nurses to keep the lights down, to let her sleep whenever I could get up to walk the floor on my own - but she turned the tables on me whenever possible.

We had the most fun walking through the quiet hallways, just talking and laughing but trying not to wake anybody who could try sleeping. I was getting doses of pain medicine through an IV so I wasn't feeling much discomfort and could walk relatively OK...dragging my hospital gown and IV pole along. Several people tried to adjust the gown so it'd be shorter than me but none of the string-tied alterations stayed in place. No big, I learned to walk with the constant threat of tripping and NO FALLS. I did alright. :) I stubbed my toes on the base of my IV pole countless times though.

Whatever, it was all fuel for humor between my daughter and I. She was overtired and fresh from college stress so the two of us made a heck of a pair as we waddled around from place to place. The staff at the hospital was always encouraging, extremely helpful. I didn't want for anything. Even the nurse who comes in to check blood sugar came to see me at regular intervals.

We were impressed!

That night, I was introduced to chicken broth, beef broth, sugar-free orange jell-o, water, ice chips, sugar-free popsicles...whatever I felt I could take in. I kept with the ice chips mostly because they -felt- good and my throat was still raw from the mandatory breathing tube I had during surgery.

I slept off and on, talked with Hopper and the nursing staff, paid a little attention to TV and rolled into the next day like I didn't just have a big piece of an organ removed.

I still haven't felt the change in my actual stomach yet. At only 1 week out, I'm still sipping on liquids so there hasn't been a test of any sort to see what the new size holds. I did get to see blue chalky dye stuff move through me while in radiology the next day...but still no real *feeling* toward the small pouch.

Overall I am feeling well. I maneuver OK and most of that movement is pain-free. I haven't taken any pain medicine in a few days. I've been sleeping here and there. Trying to get comfortable in bed is probably the hardest thing about being home but it's gotten a little easier. I'm managing. :)

My disposition is good and so far I can say, "Yes, I'm glad I did this." I will let you know if that changes.

Wednesday, February 17, 2016

How Much Water Can a Body Made of 65% Water Take?

I admit to being kind of a dummy, most of the time, so it doesn't bother me when I don't understand something. I am comfortable with asking questions - even when they reveal how troublesome it can be for me to comprehend basic information - especially when it comes to math. Math equations of any kind are my greatest weakness.

So when I left the hospital with the order to "drink 48 ounces of fluid and" have things like sugar-free jell-o, chicken or beef broth, my protein shakes, G2 (the lower carb Gatorade option), sugar-free popsicles..."but make sure you get that 48 ounces of fluid a DAY or else you'll dehydrate." I came home thinking, "48 ounces. Got it. Other people have done this successfully - I can, too."

It takes me a few minutes between sips of whatever I'm tasting just to let the liquid settle in my newly-reduced stomach, but 48...piece of ....not...cake. I assumed that by fluid and all the options pooled on my menu, the word "fluid" could only translate to "water." What else could it be? Everything else was outlined as an and - as an addition.

In the few days of being home, I hadn't been able to drink 48 ounces of water. I filled my 24 ounce bottle up and did the best I could, and I had little sugar-free jell-o shots... little one ounce servings of chicken or beef broth...little one ounce servings of protein shakes...the occasional sugar-free popsicle, and water, water, water, water, water.

And I wondered how the hell I was going to get nutrition just drinking (mostly) water for days on end. Didn't I need the nutrients from like the broth and the protein shakes especially?

I looked online for the answer. Websites all say the same thing...48 ounces of fluid....and then they give you a list of things you can have in addition to water.  I admit to having more of those and less of the water, as of yesterday, after finally confirming with one of my nurses.

Me: "I think I'm getting enough fluid (water). I know I'm supposed to have 48 ounces and it's not been easy with the jell-o and the broth and protein shakes and other stuff. I get full and water gets really boring. How am I supposed to drink 48 ounces of water and have other things too?"

Then she explained that I can have anything in the list as long as I get 48 ounces of any of those fluids in by the end of the day - to stave off dehydration. Water is a priority, of course, but protein is too. I was hoping she'd say that!

Now I'm sharing this because the world is full of dummies like me who may take an assignment quite literally and not know the difference between additions and options, based on how the information is presented.

So now I'm having a much easier time of sipping my G2 and worrying less about my "fluid" intake and more about getting sponsors for my radio show. I can't just take time off, you know.

Monday, February 15, 2016

Farting is a Necessary Virtue

Of all the things I wish I understood about my vertical sleeve gastrectomy (VSG), the level of pain/discomfort and pressure that gas you feel immediately after surgery is tops. 

It's so bad it took whole lot of people to convince me that the surgery really did go as well as the surgeon said. Now that I'm home and out of that pain, I'm not embarrassed to pass gas in front of anybody...which is funny because I've dramatically opposed doing so under normal circumstances since early childhood. 

Benjamin Franklin shared an idea of how to create something pleasing out of the obnoxious inevitability of passing gas; however, my perspective was completely changed by a belly full of co2 after surgery so science needn't go to many lengths.

I woke up in the recovery bay with so much pressure and pain in my chest, I feared a heart condition.  Reassurance came from several assistants and nurses whose explanations, when all strung together, helped me understand this pain was normal, it would take a little while to dissipate, they could give something for my discomfort, but it will all get better with walking once I'm "upstairs."

My abdomen was filled with carbon dioxide during surgery to create a larger work space in the abdominal cavity. I am SURE it's written somewhere in the pre-op paperwork and I am SURE it's one of those things gone over in the pre-surgical class, but I didn't comprehend the impact of having that expansion what.so.ever.

OW.

That air breathing thing they gave me to suck air into several times an hour? That caused the gas to be “pushed out” of the abdomen (as the lungs expand) so it helped disperse of some of it.
 
Walking helps the most to move it though - and I didn't care at all while walking the halls of my floor just farting away. Seriously. I felt joyous to finally rid of the discomfort. Even at home, I'd only slightly apologize for having to let one go because, well, it mattered more to me to let it than to be kind to others. 

 




Thursday, January 21, 2016

Done with Pushing Reset

So for a last time I'm hitting the reset button on both diet and exercise. It's taken a shitload of convincing from several friends and colleagues, doctors and well-meaning family and now I've decided I will.

I'm scheduled for gastric sleeve surgery February 12th. I'm on a liver-shrinking/high protein diet aimed to throw my body into ketosis an make the laproscopy a breeze for the surgeon and his team. I started the 2 (premier protein) shakes/1 meal plan right away and have hardly strayed.

I say hardly because I did take in about 3 oz. of Frito's over two days. Thankfully, that's the extent of it. Otherwise, I'm eating lunches and drinking breakfasts and dinners.  I am without a proper exercise routine for the time being.

My intent is to get treadmill'ing ASAP and then rejoin SEAL Team PT training once I get the all clear from the Drs. to do rigorous training.

I'm looking forward to so many things. I can't list them now because I'm very sleepy. Being very sleepy so often is something I will not miss. :) Talk again soon. 

Xx,
Wendy



Thursday, September 3, 2015

Do What You Have to Do.

"Your blog is total bullshit. You and your mother love the drama and stress. Jimmy was so bad to you. Yet you were never homeless or hungry. Stop blaming the [redacted] family for your problems. Your mother knew about and allowed any and all abuse you suffered. Shame on you for making your "story" everyone's business. If you need to talk about, see a psychiatrist! Don't contact my family again, ever."  My sister in law sent that (over Facebook) sometime in the past month.

I'm having trouble sleeping because my oldest step sister has stopped talking to me again. Just stopped cold. I'd thought it was strange and didn't expect it would happen again but it did.

I got that Facebook msg. and am pretty sure it's why.

My sister-in-law's msg. is in response to one of my previous blog posts (in which my family was disliked during an incident when I was 9) The incident was one that had a big impact on my emotional health and was/is obviously from a 9 year old's perspective. In the update I posted, I chose to view the incident differently and then, with help from my counselor, sought to learn how she (this particular step sibling who I was hoping to reconnect with) experienced -me- as a kid.

Maybe I was an intolerable pain in the ass. How would I know? But I haven't heard from her since attempting that...and I recently tried once more. That note from an angry sister-in-law is the only thing that can explain why.

What is there to say? Do? That isn't just going to perpetuate drama even more? Contrary to the idea that I love it, I'm doing very OK without it.  I'll sort my emotions out with professional help. Have done. Will continue to.

Meanwhile, here's to what is best for all involved.

I may still blog occasionally and I may still write personal things. Writing and blogging is how I sort stuff out. Nothing is of malice. I understand you have to do what you have to do. Fare thee well.

Sheesh!

Tuesday, March 3, 2015

Again. Yup. Day one on the Seinfeld Calendar for treadmill steps. What I need is a tiny Jen on the Edge in my pocket to remind me that one day missed isn't such a defeat that I should scrap it all. I would sit you on top of my bathroom mirror, Jen, up where the lights are.

With this blog post, I'm not going over where I went wrong. I'm just telling you I'm beginning again again with the prayer that it means ONE day I'll be able to say I began and I didn't stop for anything (not a missed day or a sickness, nothing). Hear me.

Thursday, January 8, 2015

The Seinfeld Schedule

Once upon a time I felt success. It came from getting on my treadmill every day for a week, and soon every day for two. Then a month. Then 74 days came and went and I was still getting on the treadmill in my bedroom, pumping up the speed and beating out however much mileage I could cover for however long I could reasonably stay on without becoming bored, irritated or angry. I was so glad of myself then. I'd reached a few pre-set mental milestones and was feeling the win....then I quit.

It was a flu-like bugger that rendered me helpless. I was bedridden one, then a few days. And on those days I managed to allow my mind to believe I'd failed. I didn't make 75 days. Part of me wished to get back on the treadmill and resume count, and I couldn't. I'd have to start the count over.

So I didn't go on the treadmill again. Not for ages. As in 10 months.

Call it a New Year scramble or what-have-you...I am walking again. I started this Monday and am on day four. Rather than spew all my hopes at this blog post (and set expectations!) I am only letting you know that I'm four days in...this minute.

Wednesday, October 15, 2014

Dreamed a Little Dream of Me

The following is what I remember of a waking dream:

I arrived at what we'll assume to be Aunt Mabel's house by feel. It more resembled Grandma and Grandpa's apartment on Pleasant Street by layout and also seemed like GiGi's farm house at times, but the overall sense was Aunt Mabel's with its narrow stairway to shared bedrooms and unapologetic style of bare, plywood flooring all the sweeping in the world couldn't quite turn clean.

Everyone lived there commune-like, as I've always said I'd been raised...my Grandpa was there, my uncles, some cousins I knew were related yet can't exactly tell you how...some twenty-somethings and, of course, there were the littles. Kids, I mean. A small group of parent-less children who some of the cousins took under wing or hung out with just to prevent major tragedies.

I learned that my Grandfather's catheter had a strange trick to it. In her time of taking care of  him only my mom had mastered its strange drainage system. My uncles kept letting pee get all over him and it made my Grandpa frustrated - but he felt resigned to the ordeal of it since my mom passed away.

Eager to ease his embarrassment, I stepped in and tried holding the hose end shut til someone could get a bedpan to let the fluid roll out into...and yet I was panicked because I stressed that I could be causing more damage by holding the end shut.  The oddest thing about it was... my Grandpa would pee and the catheter would presumably work like normal? But then we had to hurry to grab the hose it was attached to and find a container for the inevitable rush of urine.

All this was done in a corner of a living room type area where Grandpa sat up in his hospital bed. Uncle Mike, ever agitated at everything and everyone, had long since taken off for the night. Uncle Bob, ever casual about everything and everyone, helped Grandpa to clean blankets and lit up a cigarette. He slowly smoked.

There was a sense of peace and of being at home...even through the chaos. Everyone did as they should or would have. There was no stress for being who or what you are. We all accepted each other as is - good, bad or indifferent. Family. We roll our eyes at the whack jobs and share grins at stupidity - we band together in discomfort and seek resolve. Family.

It switched to dinner. Things were rather high brow in the dining room. I felt out of place, being that I was a guest even though they all considered me family. There were too many glasses and there was far, too much silverware. There was food, rich food, expensive food, which didn't make any sense for an Aunt Mabel kind of world. I felt like we were acting parts in "dress up," smartly asking for plates to share and commenting on whatsits as if we paid any attention to the real world. We didn't.

Try as we did, the evidence of poverty was on the table...not in the quality of the food but in its quantity. It was a meal I was reluctant to take part in - I felt obligated to take more than I wanted of the steak and other meats, even though I was hungry enough to eat what was on offer and more. I knew by taking what I wanted I'd be causing someone else to miss out. I was careful in what I chose for myself. Caring.

Out of the strange, stuffy room and onto the dusty front porch. I felt free again. Happy. Only, I noticed one of the parent-less kids. She stood right out to me. She looked like me at 7, 8 or 9 years old. She acted like me. She talked like me. I found out her name was Wendy. Like me.

Wendy was looked after by volunteer cousins and friends. She didn't seem too hurt by that...in fact, she was a charming little fat girl. All freckles, all knowing, bright-eyed and chatty. She was eating candy, ignoring a plate of home cooked something or other.

In that moment, I understood that I was there to take care of Wendy. She didn't have a parent. The people who took care of her meant well but they had their own kids, their own lives, and they weren't really giving her the kind of attention and discipline she needed. They weren't able to convey to her how important she is and how her health will equal happiness....and nobody thought to tell her she is a beautiful girl.

There wasn't anger to place on anybody. Everyone was doing the best they could. Wendy needed me. And it was like they all knew I was there to take her under my wing. I was there to be her mom and disciplinarian and chaperone and teacher and friend.

I had a good time talking with her. We had a chat about the candy. I took it away and she looked at me with awe like she'd never been challenged before. I told her she can have candy, but she can't make it her dinner. I gave instructions to her to eat the real food and expect the candy to be something special and rare. I asked her daycare sorts to, please, when I'm not in her presence, be on the lookout for that...to not let her hurt herself like that. To help her understand that it's better and more loving of everyone (me included) to encourage the real food.

They all agreed.

My dream then changed...and spun into something to do with clothing, donations, friends from the Scottsville Farmers Market, old plans coming forward...a caller reaching out to me from a nursing home...and me hurrying to show up to a meeting place. I arrived naked & I was the only person who was remotely embarrassed by that.

I know it's a mix of really weird stuff but I keep thinking that dream and missing my Grandpa and hoping I really do have custody of Wendy. She's so cute. And so worth it. I felt like I could be good for her.


Wednesday, January 15, 2014

Woulda Been "Wendy's Red Kitchen"

I am feeling out of sorts because I've come to the inevitable decision to have our vet take a, possibly final, look at our long-loved family dog to see if she feels what I fear is true: It's time. I wanted this post to be positive and jovial, the way my kitchen feels when I am in it, but I am maudlin and resentful for having the option to euthanize my dog. I sort of wish I didn't have the option....but then he'd deteriorate and be in more and more pain which is a big soul suck of a thing to see.

So, I'm going to postpone the post about my kitchen and post this in exchange. If you could keep us and Simon in your hearts over the next few days especially...thanks.


Tuesday, January 7, 2014

If You Could Change Your Story

What if some of the most defining moments of your life are ones that have you in a holding pattern? What if the true story you remind yourself and others about is what allows depression to consume you? What if your whole truth could be squeezed and pressed and processed and, from it, you could extract a single drop of a substance so powerful it could change your memory from one of pain to one of remarkable strength?

Ladies and Gentlemen: There are no known statistics for what I am about to attempt. This is a feat so daring, so death-defying, you may not believe your eyes. I, Wendy the Beautiful, will revisit a very painful, very role-defining, time in my life and I will change the outcome.

"How?" you ask. "This is a trick!" you say. "Why, it's only the power of suggestion at work," you murmur to yourself and to your neighbor, but I say this: I will not remain the victim of cruel people who could not have bothered with courtesy toward a scared and innocent child. I will no longer say to myself, "I can't believe they did this to me." I will not turn to you and gasp, "Can you believe they did this to me?!?!"

It no longer matters what they did. It matters how I reacted - and how I've continued to react through all time.

Can I take one of the most excruciatingly frustrating, sorrowful, humiliating experiences of my life and, with the superhuman strength of a tight fist, milk a droplet - a tiny dewdrop of a thing - of dignity from it? I believe I can.

First, I will have to retell you this story:

Wednesday, January 1, 2014

My Tip Jar

Maybe if I treat my blog like a New Year tip jar I will update frequently enough. I am willing to try!

So, here I am. I have managed to lose 1 pound in a year. One. Yep. I'll not go over how I feel about that because I know you can fill in for me. I don't feel any differently than you would.  So, I lost one pound ultimately in 2013. I lost several pounds over and over and over, just did not keep them off.

I am still in the U.Va. study to monitor blood glucose and learn to handle Diabetes the way it really has to be. I wish there were other ways...like anyone who has to jab her finger 6 or more times a day and then DO something about the results she sees...but I'm able to accept that taking care of this is an unchanging, unyielding process.

I started a TOPS group  in May and have been its leader all the while - which makes the loss of one total pound for the year all kinds of embarrassing. I am facing it, though, and with a deep breath am going to keep to staying positive and keep going to my meetings and keep starting over. Eventually, something has to click. Right?

I'm about to teach sedentary people how to move their bodies. I so wish I had this idea when my mom was alive. I wish I dropped everything else in my life and went to her the way my head always said to...and I wish I worked with her to get us both healthy. I can't now - not with her - and I can't realistically drop everything yet I am going to spend one Thursday a week with (hopefully) a few people who have not moved very much in a long time and who want to be present in their bodies and begin somewhere. This is exercise and also therapy for me. We can help each other.

I have begun the new year by outlining my next Best Year Yet. My focus is my health (all aspects of my health) and so many things contribute to the success of my health...things I didn't realize could or would...and the first is joy.  Whatever I do, I am surrounding myself with joy.

My first step. I am putting more design effort into my kitchen. It is already a room that I love very much. Now I am amping it up by adding the decor that has spent years on Pinterest and in my head...and hasn't made its way to my wall. My kitchen is going to be a place of joy for me where I can create healthy meals for myself and my friends and family - a place I not only love to be in but am good at taking care of myself in.

Otherwise I am just taking care to continue routine skin care and teeth brushing and hair setting/styling that always makes me feel good and fresh and relaxed. For Christmas I bought myself a new set of skin care products but I may go back to my previous set because the organics stuff I'm trying seems to make me break out a whole lot. It's weird? Chemicals for the win? The stuff I normally buy is pricey...and maybe it is a get what I pay for thing?

I put some more stuff on Pinterest that I will get for myself when I reach certain goals. I don't like to think I am materialistic. I guess I really am. Whatever, though. This is about joy. Sometimes things make me happy. Things are better for me than food.

Welcome, 2014.

Friday, October 11, 2013

The Killer Inside

"      Diabetes has been recognized as a distinct medical condition for at least 3,500 years, but its cause was a mystery until early this century. In the early 1920s, researchers strongly suspected that diabetes was caused by a malfunction in the digestive system related to the pancreas gland, a small organ that sits on top of the liver.
At that time, the only way to "control" diabetes was through a diet low in carbohydrate and sugar, and high in fat and protein. Instead of dying shortly after diagnosis, this diet allowed diabetics to live - but only for about a year.    "  Follow this link for an Insulin history source.

But why would people with Diabetes die so soon after diagnosis before a human-safe insulin was created? Probably because by the time a doctor could diagnose someone, it was far, too late. Diabetes is a very quiet, consistent killer. 

Think of a meticulous psychopath who plans his moves and covers his tracks extremely well. He appears friendly, even charismatic, and you feel comfortable in his presence. Little do you know he is prone to rage and can comfortably, swiftly take as hostage any victim who looks appealing to him. He is tough to pin down. He can kill for years before anyone even knows it's him - assuming anyone ever does.

Now name this psychopath "Sugar." Sugar is so good at taking lives that it can escape formal diagnosis (in cases like heart attacks, strokes). It comes in many forms which can confuse or trick people into thinking they are safe. What's worse is nobody wants to believe it. And, finally, Sugar has an addictive personality. No matter how you try you just can't seem to get rid of him. He can charm his way back to you. 

How can something/someone be so sweet and feel so good yet be so malicious and deadly? You can dwell on that mystery or you can equip yourself with awareness and protect yourself from harm.

Yeah, we're all going to die. Why not live long and relatively healthy, much less painful, lives until that happens?

I am not a doctor. I'm taking part in a Glycemic Load, Exercise and Blood Glucose study through the University of Virginia. Feel free to ask me any questions about what I am learning and doing.

Monday, October 7, 2013

But I Knew Everything

Best news first: I am on the behavioral side of the study. Yaaaaaay! It feels good to get excited about my health. I've missed that feeling.

I came home with a binder full of information on the Glycemic Load, Exercise, Blood Glucose (GLEBG) program/Diabetes management and got right to work. One of the first things I learned is that I know next to nothing about Type II Diabetes. I'll start with what I did know:

My grandmother and her sister had Type II Diabetes. My mom had it. It runs in my family.
You can't eat a lot of sugar if you have Diabetes.
You can take medicine but if your Diabetes gets worse, you have to be able to give yourself shots.
The disease is with you for life.
People can lose their legs, feet or toes.
People can get Neuropathy or nerve damage.
It is really hard to manage Diabetes.
A lot of people have it.
Fat people get it.


What I didn't know:
When blood sugar leaks into your body, it corrodes your arteries and nerves.
"Complications of Diabetes"  are heart attacks and strokes and other known events that happen to cause death in the body.
Anyone can get it. It's not necessarily a "getting-fat-comes-first" disease.
With practice and diligence, it's not really hard to manage Diabetes.
Diabetes doesn't get worse all by itself. Lifestyle and habits help it along.
Stress and trauma elevate blood sugar and can launch you into hyperglycemia.
You can use the glycemic index to help you navigate through which foods are safer for Diabetics to eat.

I'll know more as we go. The biggest revelation for me was that even though people I love have lost limbs and my mom told stories of her neuropathy....I didn't truly understand how critical Diabetes management is. The routine of taking blood sugar and watching my loved ones eat sugar-free candies was just another part of a normal environment for me. But so was a diet of heavy foods and minimal exercise. And so was complaining. When all of that becomes regular to you, just part of daily life, you really don't know there is a freer way to live. This is what is normal. You accept it. The scary thing is, nothing that ought to be alarming stands out when everything feels like mundane business as usual.

This week I'm learning to take blood glucose readings a few times a day and am monitoring how I feel before and after meals. It's a first step in the first week of being in this study. I have a feeling I will learn more than I ever wanted to know about Type II Diabetes. Lucky you get to come along with me.

Wednesday, September 25, 2013

Guinea Pig Me

I've joined the Type 2 Diabetes Mellitus blind study at U.Va.'s Center for Behavioral Medicine Research. Not sure which control group I'll belong to just yet, but I am very much hoping to be in the behavior modification group rather than the group that is dependent on the use of Metformin to regulate insulin for the next six months.

My intent for signing up is to follow whatever instructions I'm given over the study period and I have some apprehension in doing so...mainly because to complete the study successfully, I will have to test my blood sugar several times a day, every day, for the next six months. I want to be a fair and dedicated participant so I will only go ahead with signing on the dotted line (so to speak) if I believe I can endure all those finger pricks. Initially, they're not going to bother me. Over time, if my fingertips become sore or sensitive or, worse, unfeeling, I am bound to get angry.

SO some adjustment is going to be necessary. Lots of patience for the redundancy of logging my blood sugar numbers. The flip side - the best side - is that, with U.Va.'s help, I will learn how my body responds to my eating behavior and how it responds to my lifestyle, too. OR I will learn how it responds to Metformin. Yeah. PLEASE LET ME BE IN THE NON-MEDICATED GROUP!

I've printed my paperwork and will bring it with me to my initial visit, tomorrow morning, where I will sign it if  I believe I can withstand all that blood sugar testing and record-keeping. Right now, the accountability of being on a program that is monitored by the doctor and nurse practitioner at the center could provide enough emotional fuel to keep my engine going at those times when I might run out. It's within reason to believe that small successes I reach along the way will provide all the emotional fuel I need to keep going.

As of Midnight, there is a restriction of eating or drinking anything but water. Tomorrow, I will weigh in, find out my fasting blood sugar number, have lots of diagnostic exams (including a stress test,) and take home my first week's worth of information on how to get started. I'm told it's going to be a three hour process.

Whew!

Monday, September 16, 2013

My Gift from Mom

This morning on News Radio WINA I met a Dr. I've been praying to find. My nutritionist Ivana Kadija can verify that I've had so much trouble with carbohydrate addicton, getting a handle on it (as I once did very well!) since my mom died has frustrated me...it's been so difficult to do but is essential to my health. Essential.

I'm Diabetic now and that is just an open door to inflammatory disease, heart disease, all. So, I've reached out to a few specialists whose mission aligns with my own.

The Northern VA Dr. who I made an honest plea to for help wrote me back a "why are you telling me all this?" To me, it was a slap in the face. She went on to invite me to make an appointment. I did, but her initial response never rested well with me. I plan to cancel.

Another Dr. responded with kindness and encouraged me to make appointment with Endocrinology at UVA.  That's scheduled for October.


But today was a gift. A gift.

During our Live Well segment, Dr. Daniel Cox showed up to detail what it's like to live with Type 2 Diabetes. It is a disease he handles himself and is convinced can be naturally controlled by lifestyle change - in a lot of cases.

He said the same thing Ivana always tells me: Low Carb Diet. LOW CARB DIET. LOW CARB DIET! So many people living with Diabetes are taught to eat what they want just limit the amounts and, to me, it is killing them. I watched my mom die this way. Untreated, unable to control my food addiction, I am going to die this way.

Dr. Cox said whole grains, oatmeal, all of it...unhelpful. (I swear I heard Ivana say yay!!!) Then he said something more helpful than I could have dreamed:

UVA has a new program planned to monitor 50 Diabetics who meet certain criteria and will agree to change their lifestyles, monitor their blood glucose and experiment not with drugs but with food - something Ivana has encouraged me to do to no end.

I feel like her want for me and my want for myself have aligned in this opportunity.

Moreso, I wholeheartedly believe this is all a gift from God and my mom. Probably God but my bet is he's used my mom to help me, knowing how much I need her.

Here is the evidence....

My prayers have been so earnest and so needful of support, communal support, close close close monitoring, accountability and raw education.

I've made attempts to get help over and over and over - I cannot tell you how much.

After doing the interview, Manna sent me a photo of a penny she found at school. Between us, pennies mean my mom is with me. Quarters mean my mom is with Manna. 

I took a nap today and I dreamed I was with my mom. You may not think that a big deal but I've not been able to talk to my mom and hear her for over a year since she died. We walked a HOSPITAL hallway. Tufts Med Ctr. probably? Where I last spent time with her alive.

She and I walked and talked about this study...and I told her I was excited to do it. I carried on and on as you can imagine and she was glad for me...as she always is when I decide to help myself. Then I asked her if she'd like to be one of the 50 in the study (clearly not remembering she has died) and she said no very firmly. And I started to get irritated and all my old feelings of "why doesn't my mom damn help herself?" started to come...and I went to open my mouth to say what I would have said back then. She was gone. It was just me in the hallway.

I took a shower and started to cry...because I got to hear from my mom.

Still in my towel, I got a call from Dr. Cox inviting me to join the program. He outlined what I need to do...and away we go.

I hung up with him and sort of reflected on all that has happened: the interview, the penny, the dream, the call.... how much does it take before I realize, this is a gift?

My mom can't do this now, but I can, and she's given this to me.

I thank my mom and God so much.

Friday, August 30, 2013

From the Horse's Mouth

As I explained to my counselor yesterday, I hate taking pills. I hate feeling dependent on synthetic crap to make me "work right." I hate needing medicine. I hate owning up to the fact that I have any disease or disorder. But I do: High blood pressure. Hypothyroidism. Diabetes.

I talked at length for most of our session to make clear the feelings I have about asking my doctor to go back to taking medicines that regulate my hormones and insulin output. I do take high blood pressure medicine without complaint...mostly because I feel horrid if I don't. The headaches and general discomfort have hammered that prescription into my daily life. I hate that, too.

But I went on and on about how I've been able to regulate the Diabetes AND increase thyroid activity by diet and exercise - not to mention that I've been truly consistent with neither for a year. Of course I didn't mention that part! Fortunately, I've been to this counselor regularly since before my mom died and she knows that while there was a good six months, once upon a time, when I DID do spectacularly well via diet and exercise (and was improving my BP and every other important regulated system in my body,) that time is past...and my attitude toward drug-taking is obsolete.

I tried to diffuse her argument, saying that I did it once so could do it again. Do you know want what she said to me? She said, "Isn't that interesting that you want to be healthy, but you want to do so on your own terms. You want everything to work out the way you want it to, but you're not willing to do the things you need to do for that to happen." I was quiet for the pause. "Isn't that what your mother tried to do?"

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I can't say what I felt at that wallop, but I heard the truth. And in the span of only a few minutes, I relived the aching hours spent watching my mom's body disintegrate before my very eyes. That is what she tried to do. How much am I like her? And how do I stop before I become what she has become?

The question led me to a day long search for a physician who works with patients who experience metabolic syndromes like Diabetes and Hypothyroidism (and whose family history is full of heart disease and strokes and cancers).

I found someone who has a private practice over 2 hours north of where I live and I'm going to go see her. I've already sent her an email sort of outlining what is happening with me. My luck, she is taking new patients and can accommodate out of town people like me...and has done gobs and gobs of work to help individuals like me whose genetic predisposition is the suck.

So tonight/this morning I feel intensely mortal, delicate as tissue paper, and have not been able to sleep with all the worry over what my body is doing now. I am sorry it took such a jolt of awareness to make me look in the mirror that doesn't reflect Wendy: separate from her mom, but Wendy: the overlay on her mom's sad image. At least it took.

Wednesday, August 21, 2013

Ride the Wagon

You can imagine where I've been for the better part of a year - eating this and that, screwing around with diet and exercise, suffering grief, being angry, making myself too busy to pay attention to my grief...you name it. Then I shaped up again, decided to be "regular" and go the controlled diet and exercise routine. I lost a little. I gained a little. I lost a little. I plateaued. Calorie counting wasn't working for me...so I spiraled right back into carbs-loading and half-assed caring about myself and my weight.

In the back of my mind, though, there is this image of my mother lying in her hospital bed, alone but for a single roommate, with no one to help her get up and go to the restroom. It is a life she accepted because she was defeated by her diseases. It is a life I yelled at her for living. I cried at her for giving up. I begged her not to die. She wouldn't do anything - couldn't do anything - to help herself. It was too late. I didn't believe it, but she did. She argued no...but she had to believe it to resign to the arguments of rehab workers refused to lift her out of bed - it took too many people, she was too heavy, required an electronic lift, yadda yadda. Every time I fought for her, she fought against me. Why?

Why couldn't she just fucking help herself?

At the time I was doing my "damndest" to live a better life - strictly low carb, seeing amazingly great results. I didn't get why she didn't just STOP hurting herself by not trying.  When she died, I was torn up. I hated her. I hated me. I hated fat. I hated disease. I hated my family. I hated mom's friends. I still have a lot of anger I am working through because I miss her SO much and her death feels like a needless, wasteful, horrific tragedy....like murder or suicide.

I've been seeing the same counselor for my own weight loss issues. Like I said, I let go of everything I worked hard to achieve after my mom died. I regained 30 of 50 lost pounds. I have to start over. Again. I hate starting over again. I hate that I quit.

My counselor showed me this:





In this I see how I treated my mother. I see how some people probably look at me. I see how it's possible she could not help herself. I see how I HAVE to help myself before I suffer the same fate. I have to get back on the low carb wagon and ride it like there's no tomorrow. There may not be.